Prep for the week 
Saturday, January 03, 2009, 15:49 - General, Doctor, Events
Posted by Administrator
The weekend brings us to getting ready for another trip for Christina's appointments. Christina has her next round of Botox. We are also starting Phenol blocks.

I am a little concerned as always when we try something new. It is the next step to help Christina overcome the tone in her legs.

We talked with Dr. Tanaguchi about her arms and he is willing to start Botox there too. I am afraid that will be too much new for Christina. Angela agreed. We also asked her therapists, I wanted to be sure it was the right decision. We will plan on Christina getting Botox in her legs and arms on the next round.

Cheers, little firecracker!!!

The end of 2008 
Thursday, January 01, 2009, 01:19 -
Posted by Administrator
Sorry it has been so long for an update......

Christmas was fun. I got a lot of real cool toys and have had a great time playing with them. I got this tool bench that little animals pop out when you hit a shape. I crawled to it the other day. Then when I was going to show daddy I went right to him because it was bath time. I am getting stronger in the arms and legs, so I don't need the a lot of help on the floor.

It was nice to have daddy home more than usual. It is sooo much fun to play with him.

On Christmas Eve Crystal and the boys came over and we all made sugar cookies. While we were doing that daddy set up skype on the computer from work and scared Crystal. It was funny.

The day after Christmas mommy, Crystal, Cole and I  went shopping at the mall and had lunch at Arby's. I always have so much fun shopping. HEEE HEEE

Mommy and daddy are getting prepared for the trip to the cities. I think that they are nervous and anxious. We all want to see what the results will be. I know that I really want to walk around and get into things. Soon I will.

Pictures will be coming soon.

HAPPY NEW YEAR everyone.


This year has gone by so fast. All in all it has been a wonderful year.  Of course Derek and I got news that we did not want to get but that is always going to happen. No matter what the news is Christina is doing so great and we all have each other. Christina is growing so fast and learning new things all the time. She is such a blessing in our lives and she is truly an amazing little girl.

Crawlin' 
Sunday, December 28, 2008, 22:06
Posted by Administrator
Christina, my little fire cracker, was wriggling her way towards a toy with Angela. When I came into the room, I sat on the couch to watch. Christina lifted her head up to look at me and smiled. She started to turn towards me and gave up on the toy. It was wonderful to see her wiggle and inch along.

It is a special feeling when she tries so hard to make it to me. Christina is one very special girl.

Lots of hugs and kisses to you Christina!!!l
Hard drive 
Sunday, December 28, 2008, 16:36
Posted by Administrator
The scenario...
Angela and Christina went to the mall while I backed up my data.
All is saved, the new hdd is in and formatting.

Next to install all the software.
iPod 
Saturday, December 27, 2008, 23:35 - General, Doctor
Posted by Administrator
I received a new iPod for Christmas. It is fun learning how to navigate and find the features.

To try my skill, I am posting with it. Typing on a screen is not easy. Maybe someday I will get used to it.

Christina is still sick. Or maybe I should say sick again. She can't seem to shake whatever is going around. Her preop is on the fifth. I hope she is ok for surgery on the seventh.


Merry Christmas!!! 
Wednesday, December 24, 2008, 21:37 - General
Posted by Administrator
Enough said.
Sick again 
Tuesday, December 23, 2008, 16:15 -
Posted by Administrator
I am sick again. I went to the doctor today to make sure I will be okay when I go to Children's.  I had another ear infection and a very sore throat. So the doc gave me a shot of an antibiotic in my leg and that is suppose to take care of everything. It was real painful but mommy was there and made me feel better.

Yesterday I walked in my braces all by myself while listening to Peggy Sue. I really like music. We have been doing a lot of indoor activities because it is really cold outside.

More Botox 
Sunday, December 21, 2008, 13:07 - Doctor
Posted by Administrator
The time has come for the first round of Botox to be wearing off. We go back again early January. They are also going to do Phenol blocks.

The Phenol requires Christina to be under, so we will not be able to hold her hand during the procedure.

We are also looking into the Botox for her arms.

It is all a lot to think about.

Phenol Blocks 
Saturday, December 20, 2008, 01:32 -
Posted by Administrator
So the trip to the cities yesterday was not fun at all. There was a big accident on the freeway in Wisconsin and we had to sit there for a long time. We did make it to Minnetonka on time with enough to spare for lunch before my appointment.  So Tanaguchi said that it is a go for phenol blocks to help my hips develop correctly. The results are immediate and he said that I will probably have to re learn everything that I know; such as walking in the gait trainer and balance, because the tone in my legs will be different.  We are also looking at using botox for my arms but mommy and daddy said that we are only doing one thing at a time. I am also getting botox in my calves at the same time as the phenol.

So when I get the phenol I will be in the OR and mommy and daddy can not go in with me. I know that they are sad about that. I am a trooper I know that I will be just fine.

News today my tooth (molar) finally broke through and there was a lot of blood but it felt better after wards. I still do not want to eat much unless it is cold but that will pass soon. Yippy

Pictures will follow. Daddy got a picture of the whole crew at Gillette Childrens.

Cole 
Thursday, December 11, 2008, 22:00 - General
Posted by Administrator
Cole came over tonight. Dave and Crystal had a concert to go to. Christina, Cole and I had a good time. It is interesting to watch Christina when another child is around.

We sang, played with toys, and had a snack. Christina and I taught Cole some signs. He catches on quickly.


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